Collaborative project

CPIP (Cerebral Palsy Integrated Pathway)

Cerebral Palsy Integrated Pathways (CPIP) is a system developed by a group of children’s orthopaedic surgeons and physiotherapists from all regions of Scotland

Cerebral Palsy Integrated Pathway logo
Status

Active

Start date

January 2012

Overview

The aim of CPIP is to provide a high quality, standardised follow-up programme, including hip surveillance, for children with cerebral palsy that identifies musculoskeletal problems by regular physical and radiological examinations to enable effective management of these problems during childhood. The pathway is based on best practice guidelines from Sweden and Australia and meets the principles of care recommended in the 2012 NICE Clinical Guideline ‘Spasticity in children and young people with non-progressive brain disorders.’ The successful implementation of CPIP in the UK highlights the importance of teaching and learning in practice. This multidisciplinary approach to managing hip health in children with cerebral palsy is now firmly embedded in clinical care. This ongoing work has been transformative with CPIP data used to impact the care of children with CP worldwide, not those just in the CPIP system.

HIC's role

HIC has created a surveillance application to record and track the examination and x-rays in children with cerebral palsy. The monitoring of this high-quality data collection facilitates better, more consistent musculoskeletal assessment surveillants and supports detection of deviation and deterioration of hip joints in CP patients. This process allows the data collected to be accessible to those who need to know, resulting in enhanced communication and more consistent treatment including musculoskeletal assessment, surveillance x-rays and established pathways. This will undoubtedly continue to enhance the care of children with cerebral palsy.

Impact

  • The original project started in Sweden in 1994 as CPUP
  • The CPIP project started in 2012, and the system went live in 2024
  • Approximately 14,000 children with CP on database
  • HIC has been approached to create more versions of CPIP for other countries, regions and trusts
  • 14 instances of CPIP currently in UK
  • CPIP is in use in all 4 nations of the UK
    • 2,800 registered patients in Scotland
    • 9,400 across England
    • 280 in Wales
“HIC have been instrumental in the success of CPIP. The quality of the database created is of a high standard while representing good value for money. We are very grateful to the team at HIC!”

Hilary Findlay Musculoskeletal Physiotherapist

You can review CPIP publications to find out more about the project.

Related groups

Health Informatics Centre (HIC)

Project type

Collaborative project